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Ask Me!: The Hardest Part of Advocacy

We only met a few times in real life, but each time our paths crossed those moments were filled with joy. As anyone who met or followed her knows, Sheila knew how to shine…with her smile, her eyes, her open heart, and her love of sparkly things. If I remember...

The Role of Advocacy in Patient Care

Helping pharmaceutical and healthcare organizations to support more self-advocacy by patients is one of my primary goals in the work I do. I first became an advocate for my late husband. I quickly realized that when someone experiences a health crisis, navigating the...

Knowing When To…

Caregiving can sometimes feel like you’re walking on a tight rope…with your loved one, the medical team, family members or friends. When Gary first started on chemotherapy, we identified several concerns ahead of time. We wanted to be sure he maintained his weight. We...

The Invisibles

According to AARP, in 2017*, 41 million caregivers provided over 30 billion hours of care valued at over $470 billion[1]. Though the number of caregivers supporting loved ones annually in the United States and the amount of care they provide is so significant, they...
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