While attending the OMG Summit 2102 in Las Vegas, I had the opportunity to meet with Sally Dominick, Project Manager and Samantha Bailey, Study Coordinator for Fertility & Parenthood in Young Cancer Survivors at Moores UCSD Cancer Center.
Fertility is a highly significant issue that presents uniquely to Young Adult cancer survivors, yet there remains a large gap in education about:
- fertility choices at the time of diagnosis,
- funding for expensive preservation options,
- implications of choosing fertility
- parenting when preservation leads to the gift of a family for a survivor.
Sally & Samantha diligently devoted their time at the Summit to man their booth and reach out to attendees. They educated about fertility options and about studies the organization they work for currently have available for YAs to participate in to continue to build the body of knowledge in this arena.
They’ve kindly offered to join us for a 2 part blog interview this week. Sally & Samantha, please share with my readers some background on your organization, Fertility and Parenthood?
We are a team of clinical providers and researchers at the University of California, San Diego. Our approach is to use innovative ways to reach young adult cancer survivors to educate them about reproductive health.
Individually and as a group, we are passionate about disseminating information on reproductive survivorship. We are dedicated to conducting high quality research within this unique population.
Readers can find out more about us on our Facebook Page
What is the mission or vision of your organization?
Our mission is to…
1. Provide meaningful information on fertility and parenthood for young people who have faced cancer or cancer treatment.
2. To conduct high quality clinical and behavioral research in young cancer survivors on fertility and parenthood after cancer or cancer treatment.
You currently have two studies underway. Can you explain a little about each of them and how survivors can take action and participate?
Thanks to better treatments and early detection, many young girls and women are surviving cancer and looking toward the future. Many of these treatments, however, have a negative impact on fertility. A large number of young survivors are uncertain about their fertility status and may have concerns about their ability to have children or become a parent.
Right now there is limited information to help patients, families and their healthcare providers navigate these complex issues. We hope to involve adolescent and young adult cancer survivors in our research to learn about their concerns and reproductive health over the course of survivorship.
We have two studies that are currently enrolling young female cancer survivors.
One is called Fertility and Parenthood After Cancer. This is a one-time anonymous online survey to find out more about young survivors’ reproductive health and concerns and feelings toward fertility and parenthood. Female cancer survivors between the ages of 15 and 35 who were diagnosed at least one year ago can participate. Those who choose to participate will complete one 20 minute survey and receive a $20 gift card.
To find out more about how you can participate, click here.
You can also call us at 858-822-0768 or email email@example.com.
The second opportunity is a registry study called FIRST (Fertility Information Research STudy). We want to know how different cancers and treatments affect the reproductive health of young survivors over the long term, whether you wish to have children someday or not. Participants are contacted each year until age 50 to complete an online or telephone survey and receive $20 for each survey completed.
This is the first of its kind and a great opportunity to help researchers and clinicians learn more about the reproductive health needs of young survivors. Eligible participants are women between the ages 18-44 who have had a cancer diagnosis or cancer therapy. Women who are interested in participating can call the national fertility preservation hotline at 866-708-3378 (FERT) or email firstname.lastname@example.org.
Click here for part 2 to learn about some of the challenges Fertility and Parenthood faces with creating successful studies and the impact their involvement has had on Sally & Samantha.